Abstract
Perinatal hospice is a newly developing model of hospice care, offered to the family in the prenatal period, which provides support, guidance and comfort to families who make the difficult choice to continue a pregnancy after the diagnosis of a fatal fetal anomaly. The model is based on the hospice philosophy of living life fully and enjoying each moment. This article describes a perinatal hospice programme that is currently in place at a hospice home care programme of a children's hospital in the USA. It includes a case example of one family's experience of this programme.
MeSH terms
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Abortion, Therapeutic
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Adaptation, Psychological
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Attitude to Death
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Attitude to Health
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Congenital Abnormalities / diagnosis
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Congenital Abnormalities / nursing*
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Female
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Grief
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Hospice Care / organization & administration*
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Hospitals, Pediatric
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Humans
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Infant, Newborn
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Medical Futility / psychology*
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Minnesota
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Models, Nursing
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Models, Organizational
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Neonatal Nursing / organization & administration*
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Parents / education
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Parents / psychology*
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Patient Care Planning
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Perinatal Care / organization & administration*
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Philosophy, Nursing
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Prenatal Diagnosis
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Referral and Consultation
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Social Work / organization & administration