The Hungarian Twin Registry Update: Turning From a Voluntary to a Population-Based Registry

Twin Res Hum Genet. 2019 Dec;22(6):561-566. doi: 10.1017/thg.2019.100. Epub 2020 Jan 7.

Abstract

Since our last report on the voluntary Hungarian Twin Registry (HTR) in 2012, the number of pairs or multiplets included increased from 310 to 1044. Efforts to turn the registry into a population-based one are on the way. Nearly 128,000 twins living in Hungary (98,500 adults) will be mailed information on how to register on the new HTR website. Twins will be asked to invite their spouses and immediate family members. Meanwhile, strong cooperation through exchange programs has been developed with other foreign twin registries. Current research focuses on radiogenomics, musculoskeletal, cardiovascular and respiratory diseases, gut microbiome as well as basic molecular research and yielded new awards and further publications.

Keywords: Central and Eastern Europe; data collection; imaging; population-based registry; radiogenomics.

Publication types

  • Twin Study

MeSH terms

  • Data Collection / statistics & numerical data*
  • Data Management
  • Humans
  • Hungary / epidemiology
  • Longitudinal Studies
  • Registries / statistics & numerical data*
  • Research Design / standards*
  • Surveys and Questionnaires
  • Twins / genetics*