Caring for a Family Member with Psychosis or Bipolar Disorder Who Has Experienced Suicidal Behaviour: An Exploratory Qualitative Study of an Online Peer-Support Forum

Int J Environ Res Public Health. 2022 Nov 17;19(22):15192. doi: 10.3390/ijerph192215192.

Abstract

Background: The likelihood of suicidal behaviour is elevated amongst people with psychosis or bipolar disorder. This study aimed to understand how carers experience supporting family members with psychosis or bipolar disorder who have also experienced suicidal behaviour.

Methods: A qualitative thematic analysis of online peer forum posts was carried out on the Relatives Education and Coping Toolkit (REACT) website, an online intervention for carers of people with psychosis and bipolar disorder. Analysis was based on 178 posts by 29 forum users. Posts were selected based on their relevance to suicidal behaviour.

Results: Three themes were generated. "Suicide as the ultimate threat" highlights fears emerging from carers' difficulties with understanding and managing suicidal behaviour. "Bouncing from one crisis to another" reflects carers' experiences of recurring crises and the challenges of relying on emergency healthcare support. "It definitely needs to be easier to get help" emphasises carers' desires to be acknowledged by healthcare professionals and included in support offered to service users.

Conclusions: Digital platforms, including online forums, brief interventions such as safety planning, and interagency crisis models, hold the potential to meet carers' needs in this context. However, further research is required to investigate the effectiveness and implementation of these approaches.

Keywords: bipolar disorder; carers; families; psychosis; qualitative; suicidal behaviour.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Bipolar Disorder* / therapy
  • Family
  • Humans
  • Psychotic Disorders*
  • Qualitative Research
  • Suicidal Ideation

Grants and funding

The corresponding author received a PhD studentship from the UK Economic and Social Research Council. The REACT trial was funded by the NIHR Health Technology Assessment programme (14/49/34). The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care.