Appearance self-esteem in systemic sclerosis--subjective experience of skin deformity and its relationship with physician-assessed skin involvement, disease status and psychological variables

Rheumatology (Oxford). 2007 May;46(5):872-6. doi: 10.1093/rheumatology/kem008. Epub 2007 Feb 17.

Abstract

Objectives: To determine the importance of skin deformity in systemic sclerosis (SSc) relative to other disease stressors and to find psychological correlates of appearance self-esteem (ASE) after controlling for disease status.

Methods: Disease-related stressors, symptoms, physical and psychological functioning, social support, coping styles, cognitions and ASE were assessed in 123 patients with SSc. A rheumatologist determined disease duration, SSc subtype, presence of organ involvement and skin-thickness scores. Stepwise hierarchical regression analysis of disease-related cognitions on ASE was performed after controlling for selected variables.

Results: Skin deformities proved a core stressor of the disease, only preceded by fatigue. Physician-assessed disease status, including modified Rodnan skin score, was unrelated to ASE. Sex, self-reported functioning and symptoms were related to ASE and used as control variables. Both acceptance and anxiety correlated strongly with ASE. The stepwise regression procedure only identified the disease-related cognition acceptance.

Conclusions: In SSc, ASE proved unrelated to the extent of skin thickness. Psychological interventions aimed at boosting ASE should primarily target the psychological factors acceptance and anxiety.

MeSH terms

  • Activities of Daily Living
  • Adaptation, Psychological
  • Adult
  • Aged
  • Attitude to Health*
  • Educational Status
  • Follow-Up Studies
  • Health Status Indicators
  • Humans
  • Middle Aged
  • Psychiatric Status Rating Scales
  • Scleroderma, Systemic / pathology
  • Scleroderma, Systemic / psychology*
  • Self Concept*
  • Skin / pathology
  • Social Support
  • Stress, Psychological / etiology
  • Stress, Psychological / psychology